They Took My Gallbladder (and all I got was this lousy Celiac Disease)…

I detailed last year how I had to have my gallbladder removed. That operation was supposed to be the beginning of the end of my abdominal pain, my digestive issues…and it was only the beginning.

I wish I could sit here and say that I am relieved to have a diagnosis, that now I am okay, now that I know what was truly the matter.

Readers, I am not okay. Right now, I am not okay. I am reeling. I am overwhelmed at just how many foods have gluten in them. I am beyond sad that while many gluten-free substitutes exist, I will not be able to have my stepmother’s cream-chipped beef ever again. I can’t have a bowl of Cream of Wheat on a cold winter morning. All of this in itself is a lot to deal with, and I fluctuate between ‘somewhat okay’ and what seems to be ‘grief’. I could deal with all of that on its own. The most prevalent emotion at the surface is seething, boiling anger.

When I went to the hospital in June 2012 with excruciating abdominal pain, a CT scan showed gallstones. The hospital’s solution was to take it out. During my stay, the Mister had inquired about going to the next closest hospital (a ‘competitor’ of the one I was at), and he was given the explicit impression that this was not an option. Being as doped out on morphine, and later Dilaudid, as I was, he was my best advocate. We were gobsmacked with the news that I was to have my gallbladder removed on June 25th, 2012…the day after my 29th birthday. I spent my birthday in the hospital. I was told by the doctor that I could go back to a normal diet in a few weeks after my surgery. I was told that I could expect a month or two of wonky digestion as my body learned to digest without the assistance of my gallbladder, but that it would even out. I was told that the surgery should solve the immediate issue of gallstones, and the digestive issues I was having.

They were either ignorant or flat-out wrong, and as a result of my trust in what they told me, I would spend the next 13 months in a living hell.

I became a slave to the toilet. I would thank god every time we ate out as a family…because the kids were a sure bet that we’d eat and then get the heck out of there to go home. I noticed that after eating, I would become slightly bloated. Barely noticeable in the beginning, as I was still overweight at that time, but as the pounds came off, the change became more visible. My stomach would cramp, and I’d get chills akin to those I had as a teenager when I had a particularly nasty bout with the flu. The pain was bearable at first, but as the months went by, it would get progressively worse. I began to mentally note what I had eaten if it was particularly bad.

A pattern began to develop. My symptoms were much worse after a meal that had pasta or bread. I began to suspect a gluten intolerance, so I began to avoid gluten. My symptoms…the worst ones at least, began to subside somewhat. Every so often I’d indulge in pasta, or bread, etc, thinking “Okay, I know I’m gonna pay for it later, but that’s okay, this is a really good dish and I want it.” And boy, would I pay for it.

My brain would, I don’t know how to explain it, it’s like all my thoughts were travelling through molasses. I chalked it up, prior to my ADHD diagnosis, to being due to sleep deprivation, as my son was not yet sleeping through the night. My depression worsened. In October, my doctor upped my antidepressants and diagnosed me with ADHD and put me on medication for that as well. Both the depression and the mental fogs were eased, though neither completely went away.

I was so exhausted, all the time. I thought that, again, it was sleep deprivation. I would wake up in pain so often that I became used to it, and I assigned that symptom to a physical manifestation of my depression. After eating pasta or bread, I’d feel even more lethargic than usual. What I didn’t know at the time was that while I was avoiding foods that obviously had gluten in them, there are so many foods with gluten in them.

However, a sneaking suspicion that something was wrong drove me to do some research about healthy diet post-gallbladder removal. What I found shocked me. Even some veggies and fruits were not good for me to have. But most appalling of all was how gravely wrong the information I had been given really was. After a gallbladder removal, the patient can never just ‘go back to normal diet’. There are things to avoid, things to have in moderation, and things that are okay. I Googled “developing gluten intolerance after gallbladder removal”. The amount of hits really threw me for a loop. People who’d had what they thought was just trouble digesting products with gluten becoming a huge issue. People who were confused, frustrated, angry…people like me. More than that, I found out that my gallbladder removal was completely unnecessary. They could have removed the gallstones. Mine were bad and fairly numerous, but it could have been done.

On July 23rd, the Mister brought home hoagies (subs, for people outside of South Jersey) for dinner. I barely ate mine, a foot-long delicious Italian hoagie. I ate less than a quarter of it. The next day, I had nearly the rest of it for dinner. My friend came over later that evening, and I had a dull pressure where my gallbladder should have been. It felt like someone was inflating a balloon inside of me…and then it began to hurt. It hurt in the exact same way, with nearly the exact same incapacitating pain that had resulted in the removal of my gallbladder exactly 13 months before.

I went to the hospital (the same one that had done my surgery), and after listening to my symptoms, decided she was going to run a CT scan on…wait for it…my gallbladder. I snorted.

“Good luck finding it.” I said. She raised an eyebrow, and I informed her that it had been removed…at the same hospital, exactly 13 months prior. She thought for a moment and after hearing my response to her asking me what I had eaten, told me she was going to run a celiac panel on my blood and do a CT scan of my intestinal tract.

When the scan came back, she said it confirmed what my blood told her. My large and small intestines showed up so bright with inflammation that they alone nearly ruined the image. My celiac panel came back positive.

“I’m not really too sure how to tell you, because while there’s worse things to have, this bites pretty badly, but you have celiac disease.”

I have to admit, I’d heard of celiac disease. I knew that people who had it couldn’t have gluten because it messed with their stomach. I didn’t know that it is an autoimmune disease. I didn’t know that even small amounts of gluten would trigger the body to attack the intestines and attempt to destroy them in an effort to rid the body of what the immune system sees as poison (the gluten). I didn’t know about the increased risk for various gastrointestinal issues if the disease was not treated. I didn’t know that the only successful treatment is adopting a completely gluten-free diet. I didn’t know that there is no cure, no surgery that will ease symptoms.

I didn’t know that while not as inherently ‘dangerous’ as, say, cancer, or many other diseases, celiac disease can still kill if it is untreated.

I didn’t know that having the gallbladder removed is one of the worst things that can be done to a celiac patient.

And I definitely did not know that with every bite of pasta, every bite of bread, every drizzle of soy sauce (yeah, it has gluten in it…who knew?), every single bite of any food containing gluten, I was telling my body to slowly destroy itself. The mental fogs, the exhaustion, the pain…oh god the pain…I didn’t know that they were signs that something was going on with my body. 

Another problem that many celiacs have is with malabsorption. Because the gluten triggers the immune system to attack the intestines, the intestines get damaged and reduce the ability of the intestines to absorb nutrients from food.

So I have to wonder…how much of my weight loss was dietary change? How much was the Adderall’s doing? And just how much of that was because my body simply couldn’t draw in the nutrients it needed from the food I ate?

So yes. I am angry. I have been learning so much the past week. I have gone from a world where I didn’t really have to think about food other than “Is this healthy?”. Now I am in a world where my son can fling a noodle on my arm, and where before I’d simply eat the noodle, now I cannot. Even a small amount of gluten will tell my body to attack, even if I experience no symptoms. If I make the kids PBJ sandwiches, I have to wash my hands afterwards. I have to ask for a gluten-free menu when we go out, and above that, I must inform them that I have celiac disease, so that they know that I’m not just following a ‘fad’ diet, that I have a condition, and precautions need to be taken. I just hope that most servers are like I was, and take any food allergies as seriously as I did.

While I know in time I will be okay with this, right now I am still in shock. I have been gluten-free for a week now, and I have noticed some improvements. While my bathroom issues are still a little out of whack, I have noticed a good deal of ‘normalization’. My bloating has slowly gone down as this episode is brought under control. But in spite of all this, right now I am not okay. This sucks. The precautions I have to take are, to the pasta loving, wheat and grain loving part of me, stupid and ridiculous, and I hate them. I really, really hate them.

But to the part of me that just wants to be healthy, to have a ‘normal’ day where I’m not dashing for the bathroom, bloated, or in pain knows that the precautions that will hopefully soon become routine are not stupid, nor are they ridiculous. As the Mister says “Gluten is poison for you. It’s not stupid at all.”

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30 responses to “They Took My Gallbladder (and all I got was this lousy Celiac Disease)…

  1. sorry to hear this Merry….my doctors treat celiac & we have a nutritionist that helps ppl who have it. Dr. Moleski, my doctor at Jefferson, tested me for it, and although my blood came back negative, she said i still could have a sensitivity to it. i have to be careful because i also have gallstones (though not severe like yours) my mother had to have her gallbladder removed and she spent alot of time with gastrointestinal pain…so i wonder?? anyhow, just wanted to tell you, where i work, jefferson GI, they treat this and are very knowledgeable about it

  2. I, too, had my gall bladder removed. I knew in my gut (no pun intended) that my gall bladder wasn’t the problem, but after several years, I gave in and let the doctors remove it. Turned out I had a leaky gut and celiac disease. Wonder how many of us have had unnecessary gall bladder surgeries. Thanks for spreading the word.

    • I am so sorry to hear that you too had yours removed. Especially when later, we stop and think “Did I just let myself be pressured into having an organ removed?”

      Especially when not having a gallbladder complicates the crap (no pun intended either, haha!) out of Celiac Disease. Not only do we need to adhere to a gluten-free diet, but also an “I don’t have a gallbladder”-friendly diet. It stinks, and I am still in a stage of anger.

  3. “I didn’t know that having the gallbladder removed is one of the worst things that can be done to a celiac patient.”

    I didn’t know that either! Glad I still have my gallbladder, and thank you for the warning!

    I was diagnosed about 20 years ago with Celiac disease. I recognize everything you are going through. I know it won’t help you feel better to tell you this, but over time it will become second nature to check lists, ask the right questions and (most of the time) eat out with confidence. I have learned some remarkable adaptations for most of the foods that I used to love. It is overwhelming, but you will adjust. I promise!

    (BTW, was it you who contacted me via farmlet email this morning?) 😉

    • I don’t believe that was me, I don’t even know what farmlet is!

      But yeah, hold onto that gallbladder unless you’ve got no option left.

      • Apparently, there is a new trick on the internet… Use someone else’s name to get someone to respond via email. The email sounded like they were you and said they wanted to corroborate in a story about where I live. They even used your credentials and background information! Your background is very unique, so this was deliberate, though I can’t say what their motive was. You can just erase this if you like, but I thought you would want to know that someone out there is impersonating you via email! 😐

        I do hope you get to feeling better, and I am sorry for the intrusion.

      • This is actually rather concerning to me…would you be able to fill out a “Contact Me” form with the details, maybe a copy/paste of the email?

        Someone impersonating me is very disturbing, and (because I work with brands from time to time) has ramifications I really am not comfortable thinking about.

        I’d appreciate any help!

      • I don’t mind at all! I will copy paste it for you.

      • I replied to you, thankfully it’s just a harmless mixup…so if you’re wondering who Merry Wench is and why she emailed you, well, that’s me! 😉

      • LOL! Thanks, Merry Wench, I was getting very unnerved about this. I just couldn’t imagine why someone would contact me in such a way. I kept wondering what their motive was! Glad it is sorted out, and that it is harmless after all. 😉

  4. I cried reading this as I felt like the words were taken right from my mouth. I have experienced the same exact situation on the same timeline. It’s miserable. It’s a lot to stomach, figuratively. It’s life changing, for the individual and those around them. Knowing what you’ve been through, I’m really sorry, as I truly understand the emotions, the struggles & the changes. I’m not okay either, but finding someone else who isn’t okay for the same reason, makes it a bit easier & I’ll be following your blog. Thank you for writing the words I have no where to publish. Good luck & good health.

    • I am so sorry that the same thing happened to you. I am 6 months post-diagnosis, and while it’s gotten much easier, there are still days where I am most certainly not okay with it. Things that never held any appeal for me pre-diagnosis are suddenly very, very appealing to me. Take bread, for example. Before my dx, I rarely ate bread. I’d even go as far as to say that I didn’t like it. A few nights ago, the Mister was making a sandwich and, joking around, waved a piece of bread under my nose. The scent hit me like a punch to the gut. My nostrils flared, my stomach rumbled, and I suddenly wanted that bread, very badly.

      Now, I didn’t take offense to the Mister’s joking. He knew I didn’t particularly care for bread, so he thought it’d be safe. He doesn’t joke around like that with things I like that have gluten in them. Even I couldn’t have predicted my reaction.

      Yeah, I know, they make gluten-free bread. Udi’s is the best that I have found so far…but it just isn’t the same. I miss so many foods that, while there are gluten-free options, they just aren’t the same. I can’t sit down with a bowl of Cream of Wheat. Even Corn Pops aren’t safe. But, I do have a taste for blueberry muffins, and Udi’s (I just love them…I haven’t had an Udi’s product that I didn’t like) makes these AMAZING gluten-free blueberry muffins…you can find them in the freezer section, you just pop them in the microwave for 20-30 seconds and BAM! Tasty blueberry muffins that taste and feel like they just came out of a baker’s delicious, gluten-filled bakery. If you like blueberry muffins, give them a try.

      If you’ve had your gallbladder out, keep in mind that in addition to going gluten-free, you should avoid certain foods. There are a ton of resources online for both CD and for not having a gallbladder. If you would like, feel free to shoot me an email at contact.andbabymakesfive@gmail.com and I’ll gladly share things that have helped me the past six months.

      It gets easier in time, but there will always be times where you’ll be half-tempted to pick up a bag of gluten from the baking aisle and just slather yourself in it. It’s normal. Hang in there, and best of luck to you!

  5. I found this as I was googling and I can’t believe how much this sounds like me this is now the step I need to get checked out cause for some time I have known there is something not right but reading this article I’m almost positive this is what I have, I had my gallbladder removed 11 yrs ago and I can’t tell u when I last felt “normal” I just thought that was life for me but if I can get a diagnoses I may be able to some day say I do now feel normal.
    Thank you for this post I now don’t feel so alone

    • Jenny, I am so sorry to hear you’ve been going through this. I can’t stress enough how important it is to get checked out by your doctor rather than self-diagnosing, and even then, keep in mind it’s usually a good idea to seek out a second opinion. I was ‘diagnosed’ with a blood test, and now I am almost certain that my doctor was wrong, that my blood test was a false positive.

      Initially, I felt much better on a gluten-free diet…but then around December 2013, I noticed that sometimes my symptoms came back. I clamped down harder on my diet, I didn’t so much as look at anything that had gluten in it…but still, my digestive issues began to get worse. One day, my mother-in-law made some delicious baked macaroni and cheese, and, tired of having become a slave to the whims of my digestive system yet again, I thought “Well, I’m going to pay either way, so what the heck?”

      I ate a helping of the macaroni, and prepared myself for the abdominal pain, bloating, gas, and the all-around aches and fatigue I’d felt before. Absolutely NOTHING happened. No more symptoms than usual. I began to re-introduce gluten back into my diet, though not to the degree I’d once ingested it. Absolutely NOTHING happened. It seemed that whether or not I had gluten had no bearing on my symptoms, that perhaps beforehand, it had been merely coincidental, as I had a diet fairly heavy in gluten. Just for craps and giggles, I went gluten-free again. My symptoms got no better. I am in the process of finding out why I am going through what I am going through, and though I may not have celiac disease after all, the fact still stands that, when I had my gallbladder removed, I was told I could go back to the same diet I’d had before, and that advice was WRONG.

      I hope you find some relief soon, and thank you so much for stopping by my humble little corner of the internet, I hope you come back again! 🙂
      *Merry*

  6. Awful. What can I say except that I empathise and can match in other ways: my husband had his gall bladder removed but he doesn’t have Celiac Disease, though a host of other problems; I still have my gall bladder but I have another autoimmune disease – isn’t life grand! Much thanks for following First Night Design.

  7. I think that when you’re having so many digestive system issues they should check for Celiac. I have been gluten free for nearly a year, but I am having severe gallbladder (?) pain. I’m waiting for ultrasounds before dealing with it. I am glad that my doctor did check my gluten status before going straight for the gallbladder.

  8. I had my gull bladder out about 4 months ago and it’s only now issues with food have really became an unpleasant issue. i swear getting the damn thing out has caused a snowball effect of other things 0-o

  9. I understand the frustration most of us are having from the comments made here. Had my GB out in 2005 after 1 gall bladder attack and the attack was painful enough to send me to the hospital so, like millions of people do every year, I had my gall bladder removed and from that day on my life changed. Every morning after breakfast had to find a bathroom. Took until 2007 for my doc to test for celiac disease. So at this point I have no GB and celiac disease…double whammy. Knowing what I know now I wish I tried alternative methods like liver & GB cleansing, diet changes, meds, ect..or just went gluten free but no one gave me those options because gluten free wasnt as common as it is today and when doctors say that “you’ll be just fine without your gall bladder” they are full of crap. They are too quick to do GB removal. How many times have I Googled “Gall bladder transplant”, I said TRANSPLANT!! sounds crazy but thats how far I’d go to get back to normal again. Worse decision I ever made was having that surgery. Its extremely hard to eat out and you never realize how important that is until you’re faced with it. Want to go out to lunch or dinner with someone for work or friends? Not happening. Wanna go out for happy hour? Nope, cant eat anything there and forget beer. Family cookouts/birthdays/holidays? yeah, right, eat before you go or have a “salad”. There are times where I choose to NOT eat out because I dont want to risk it. There has got to be something out there or something researchers are close to discovering that can reverse this frustrating diagnosis.

  10. Another Lady Without a Gallbladder

    Merry, I was reading that it sometimes takes months or even years for a person with celiac disease to balance out years of ingesting what your body recognizes as a toxic substance. It might be wise to look into this before rejecting your diagnosis.

  11. I came across your blog after searching information on gall bladder/coeliac. I have been having problems for years which have progressing been getting worse and more painful. My normal doctor had said it was probably food poisoning, I had stomach pains, temperature, diarrhea,vomiting – which can go on for days. I’ve had 3 children and I can tell you the pain is unbearable. After my last major attack in March I decided to revisit my doctor, fortunately for me she was away and I saw a locum in her place. I was sent for ultrasound and had a raft of blood tests. Ultrasound showed I had 18 gallstones, I was advised these can move around and hence the pain. Blood tests showed I had coeliac, and other problems. The tests were repeated, 4 weeks later, no change. In the UK, to get 100% confirmation you are referred to a gut specialist that carries out a gastroscopy. Unpleasant procedure where they put a hose down your throat and take a biopsy from your gut. This confirmed coeliac.
    One thing that I thing you should all be aware of is that gallbladder malfunction is often caused by coeliac, not the other way around. So if you have your gallbladder removed and you are not advised the chances you have coeliac diseases, you will continue to have problems. Infact, I feel you do have to make lifestyle changes anyway after gall bladder removal.
    Please check out this great website that gives info on both conditions – http://paleoparents.com/featured/the-link-between-gallbladder-disease-and-gluten-sensitivity/ I have also been recommended a book – The Gallballder survival guide available on Amazon.
    I have been on a gluten free diet for 2 weeks, yes it is difficult but not impossible but you have to be organised and informed. Eating out and processed foods are a challenge, but not impossible with knowledge. I’m fortunate that I do feel the benefits pretty soon after excluding gluten from my diet – I don’t feel so exhausted all the time and the headaches are better,
    Now that I know I have coeliac, I’m trying to find out if removing my gallbladder (in 10 days time!) is really necessary. Or whether the fact it is malfunctioning will continue to cause problems.
    Having done a lot of reading, I feel sure that the coeliac has caused the gall bladder problems rather than the other way around. I guess I was just lucky to find out before GB removal
    Hope this helps

  12. I too have been suffering from debilitating stomach pain since I had my gallbladder out almost a year ago. I too thought that after my surgery I would be able to get back to a normal, pain free life. But I was also wrong. I didn’t have gallstones, my gallbladder just didn’t work. I had it removed on my 19th birthday. I will be 20 in 16 days and I am suffering from pain that doubles me over. Pain that makes me unable to breathe. I wake up at night dripping with sweat, and there is nothing that I can do to relieve the pain in my stomach. I’ve taken enough antacids to last for the rest of my life and none of it helps. I’ve been to doctors, had x rays and ultrasounds and I still get no answers. I went to my local emergency room last week and the PA that attended to me informed me that he had done a blood test on me for Celiac Disease, but he told me that I wouldn’t get the results until Tuesday. This weekend has been the longest weekend of my life. I just sit and wonder “what if this really is what I have?” “Will I feel better to know I have an actual diagnosis?” Sometimes I get soo depressed and scared that I will never figure out what is causing me to have this horrible stomach pain that basically cripples me. Sometimes after I eat, and I have to go to the bathroom, that too is so painful that I have to try and catch my breath. I’m in beauty school, and I’ve had to stop in the middle of giving clients a service so I can coach myself through whatever is going on with my body. I just want to get the test results back. I just want to know if this is where the worry is going to end, or if I’m going to have to endure not only more physical pain, but the emotional and mental pain as well. I know what is happening to me isn’t normal. If I had known that getting my gallbladder removed was going to cause this, then I wouldn’t have done it.

    • Hi Autumn, This sounds exactly like me! I know where you are coming from. Have they found a diagnosis as yet or are you still suffering? Bless you , so young for you to be put through this, take Care x

  13. I too had my Gull Bladder out. I was in so much pain no matter what I ate. It took them three months to figure it out you see they always look for gull stones and did not think to look further if they could not find any. What they ultimately found was my gull bladder was dead and rotting inside me. Out it came. The symptoms did not go away I still had major pain in my side constipation weight gain even though I could not eat much ironically I would eat bread. I decided three weeks ago at the urging of my daughter to try going gluten free. Day four I realized no more pain when I ate! Three weeks into it now the bloating is gone my stomach is soft (still over weight) but looking more normal. I am not as tired and have more energy. I am also hungry for everything lol I feel like my body is absorbing the food. I miss the gluten so I have been cooking and trying new ways to have my biscuits and gravy. I found a new bratty crocker gluten free flour that is great. At this time the memory of the pain out weighs the desire to eat gluten. I cannot wait to see how I feel in another month. I guess we hang in there together and see.

  14. It’s as if you were writing about me! I lost my gallbladder a year ago and I was just diagnosed with Celiac Disease. I am furious that though I had a laundry list of other autoimmune conditions and symptoms, not one doctor connected the dots. It wasn’t until I told my PCP that I suspected that I might have a grain allergy that someone finally tested me, and even then there was no discussion about how Celiac and Gallbladder disease might be related. Thanks for telling your story. Perhaps it will save someone the pain and suffering that we’ve endured.

  15. Hello! I just stumbled across this randomly and it sounded so similar I had to comment. I’ve had a sensitive stomach all my life but it kicked into high gear after having my daughter 5 years ago. All throughout my pregnancy I had stomach pain so bad I couldn’t move. There were a few times where i was balled up on the floor crying I was hurting so bad (I now know that they Gallbladder attacks). I asked my OB/GYN and he told me not to worry, that it was gas and to not go looking things up on the internet and get myself worked up. So I didn’t. 6 weeks after my daughter was born I had a Gallbladder attack and was vomiting repeatedly so we rushed to the ER. My gallbladder was very inflamed and full of stones and I was told I needed to have it removed. At this point I knew so little about the gallbladder I barely knew it existed. I had it removed Nov 2011 and the doctor told me to cut back on fatty and greasy foods but otherwise no real dietary changes. Ever since then I’ve been rushing to a bathroom after every time I eat. I no longer go to dinner parties or any social gatherings, I dont try new foods. I’m depressed and anxious over my ticking time bomb of a stomach. I was recently diagnosed with Hashimoto’s Disease and during my research of that I discovered the correlation with Celiac Disease. I have gotten so angry over the fact that I had an ORGAN removed from my body and there were other tests that could be done to determine the cause. I was just told its bad and it needs to go and thats that. I wish I had known more before the surgery but I just trusted and listened to the doctors. I’m going to question everything from now on. I haven’t been tested for Celiac yet but I plan to soon. Too many things line up for there to not be a sensitivity.

  16. I know this is an old post but maybe you still read comments. I saved my gall bladder by researching before I let them take it out, diagnosed myself as gluten sensitive and never had another attack. I just thought I would let you know that celiac/ gluten sensitivity doesn’t just show up as intestinal issues. My daughter has it and her symptoms are emotional, often misdiagnosed as ADHD. We have to keep her completely gluten and and dairy free or she is a impossible to live with. Just thought I would mentioned it in case you see that in your kids.

  17. I truly feel for you. But it wasn’t your gallbladder removal that gave you Celiac Disease. You can have celiac disease without symptoms. Your I’ll gallbladder was a sign of the disease to begin with. I am waiting now to get my gallbladder out. Was wrongly informed by my allergenist as a young teen that I could eat the foods I was previously tested allergic to. (I have always had a wheat allergy) little did we know what symptoms I would have because of the wheat. I have all your symptoms and have been suffering them for 25yrs without a Dr who will properly diagnose me with Celiac disease. As I wait for my upcoming surgery, the surgeon has promised a scope and biopsies. I have to eat wheat and gluten daily, suffering & vomiting, until the day of surgery so the biopsies and scope show the damaged digestive system that for the past 5yrs I have been trying to heal while Dr’s doubted my every word bc fat people don’t have celiac disease, you have acne not celiac rash, your pain is due to your weight not fibro caused by celiac, you blood test is normal bc you haven’t eaten gluten in a long time…..the excuses are endless. But 1 thing I gave learned is that celiac and gallbladder disease have a link and many many people with celiac disease don’t have symptoms until after their gallbladder has become inflamed.

  18. Did you have any hair loss? Reading your blog I felt I could relate to a lot of this. 3 years ago I had a very impacted gallbladder plus adhesions that almost killed me so it was medically necessary to remove it. Now I’m dealing with poor skin, nails and all over body hair loss and only getting worse. Lab results all show normal (albeit a bit on the low side with a few) but I feel my body is screaming something is wrong! Derm gave me one med that made me break out. Now going to a holistic doc that specializes in endocrinology. Thinking possible hormones or food allergies. She does it all from the sound of it.

  19. Cynthia Medley

    I’m so glad you shared your story… I’m living a nightmare as well… Celiac…no gallbladder… Still non gluten foods bloat me so bad… 40 pound weight gain… Midsection…. Grocery store GF food … Not true… Most are made in a factory that produces products that have gluten in it…. And they cost triple the amount….
    After the million dollar work up as my dr put it… Which really cost bout that much after everything… My gallbladder was just dead… I chose to remove it… I could barely even move without severe pain in my stomach…

  20. I am SOO glad you shared your story. Reading it, I got chills because it feels like I have written this. It took the doctors almost a year of me coming to the hospital with abdominal pain for them to realize that my gallbladder had shrived up into a little black ball hence why I was feeling so awful. Surgery was performed and I thought I would go back to my normal life… I was wrong.. SO WRONG. Since then my body cannot digest any beef, pork or coffee.. Then another year later I was diagnosed with Celiac Disease… I am left to eating Chicken, fish, veggies and fruit. Its been almost 3 years now that I have been Celiac and I just CANNOT come to terms with it. I test it regularly and I PAY FOR IT. Oh boy.. do I ever pay for it. Its not fair, I’m only 25 and I will never be able to eat some of my favorite foods again. I just want you to know that you are not alone. 2017 is going to be a year of approval and it’s going to suck being singled out and eating like a bird. But WE GOT THIS. I am noticing how much my body thrives when I don’t eat the foods that irritate my stomach.

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